SUDC UK TEAM

Board of Directors

Camilla Gooden

Co-Founder, Chair of Trustees and Communications Director

SUDC Parent to Rex 10.4.2013-7.2.2015

Camilla has a consumer PR and communications background with experience in agency, in-house and more recently freelance project work for L’Oreal UK.  With over 20 years in PR she brings a wealth of experience to SUDC UK and will be managing all communications, fundraising and publicity for the charity.

Email: camilla@sudc.org.uk

Nikki Speed

Co-Founder, Secretariat Trustee and Medical Director

SUDC Parent to Rosie 10.10.2011 – 23.12.2013

Nikki has a PhD in biochemistry and has experience working in both academic research and pharmaceutical sales and marketing. Nikki will be using her scientific background and understanding of the NHS to develop policy, optimise SUDC research and collaborate with healthcare professionals.

Email: nikki@sudc.org.uk

Helen Charalambous

Co-Founder, Trustee and Corporate Director

SUDC Parent to Yianni  29.06.2012 – 15.11.2013

Helen has worked in the investment industry for more than 15 years for organisations including The Bank of New York, State Street Global Advisors and NWQ Investment Management Company. She is currently vice president and head of fund distribution for EMEA at Nuveen.  Helen will be managing all of SUDC UK’s corporate relations and corporate initiatives for the charity.

Email: helen@sudc.org.uk

Laura Gould Crandall

Trustee, Founding Member and President of the SUDC Foundation

Laura Gould Crandall, MA is currently a research scientist in the Department of Neurology at the NYU School of Medicine, joined NYULMC as the director of the SUDC Registry and Research Collaborative, and President and Executive Director of the SUDC Foundation. Laura is also a licensed Physical Therapist in New Jersey and New York. She earned her undergraduate and postgraduate degrees from New York University in 1990 and 1996.

In 1997, her first child, Maria, succumbed to Sudden Unexplained Death in Childhood (SUDC) at the age of 15 months. Through the death investigation of Maria, Laura was convinced that changes in the system could and should be achieved.

Patron

Jenni Thomas OBE

SUDC UK is thrilled that Jenni Thomas agreed to come on board as our Founding Patron.  With over 45 years’ experience in the NHS supporting bereaved families, Jenni Thomas is widely recognised in the UK as a leading authority in bereavement support for grieving families. In 1994, Jenni founded the charity Child Bereavement UK to support families and educate professionals when a baby or child dies or is bereaved.  Throughout her career, Jenni has learnt – and continues to learn – from families.

When parents Tom and Nikki were thrown into the painful world of grief after Rosie died suddenly and unexpectedly, a priority for them was to seek guidance to understand the most helpful way to support their young son Adam.  Nothing can prepare grieving parents for the enormity of being parents to a suddenly bereaved young child.  So, it is enormously caring that bereaved parents have used their experience of what they needed to set up this important charity.  I know how valuable it will be to other families who sadly share the experience of losing a child in this way, as well as to the many professionals who are alongside the families at this time.  I am very honoured to be a Patron of SUDC UK and am grateful that I can use its excellent resources in my work.”

Jenni Thomas OBE

Expert Advisory Board

Professor Peter Fleming CBE

FRSA, PhD, MB ChB, FRCP (London), FRCP (Canada), FRCPCH.

Peter Fleming is a Professor of Infant Health & Developmental Physiology at Bristol University. He works primarily in research, teaching and safeguarding children and over the past 40 years has led several large-scale epidemiological studies of factors contributing to unexpected deaths in infants and children.

Peter was the lead clinician in the UK “Black to Sleep” Campaign in 1991, which led to a dramatic fall in the numbers of infants dying suddenly and unexpectedly. He has been involved as a collaborator and advisor to several similar campaigns in other countries. This work is estimated to have led to the saving of over 15,000 infants’ lives in the UK, and over 100,000 worldwide.

Peter continues to conduct detailed research in this field and has co-authored more than 360 scientific publications. His current research is the largest study to date of unexpected deaths in childhood in the UK.

The sudden unexpected and unexplained death of a child is possibly the worst tragedy that can occur to any family. Research into unexpected deaths in infancy has led to an 80% reduction in such deaths over the past 30 years in the UK. Unexpected deaths in older children are less common, much less well understood, and to date little research has been conducted in the UK to try to understand or prevent such deaths.  I am delighted to be associated with the newly established SUDC UK, which will provide support to families bereaved by the unexpected death of a child over one year of age, and provide leadership and encouragement to researchers  to improve knowledge, understanding, and our ability to prevent such deaths.”

Professor Fleming

Professor Neil Sebire

Professor Sebire is a clinical academic Paediatric and Perinatal Pathologist at a specialist London Paediatric Hospital, and as Lead for the NIHR BRC Diagnostics and Imaging Theme, is responsible for delivering translational research projects across radiology and laboratory medicine in one of the leading units of patient-focused research in this field.

He has held numerous Regional and National strategic and academic roles, including within RCOG, RCPath, CCLG and BRIPPA, including training.

His main current research interests includes research involving novel postmortem investigations into causes of sudden unexpected death in infancy and development of the minimally invasive autopsy.

Among his other roles Neil is currently is an advisor to the international SUDC Foundation, the Lullaby Trust and SUDC UK.

Dr Peter Sidebotham

Dr Peter Sidebotham is a Consultant Paediatrician in Warwickshire and an Associate Professor of Child Health at the University of Warwick. He is a member of the Local Safeguarding Children Board and is Designated Doctor for Child Death Review in Warwickshire.

Peter’s research includes studies on unexpected child deaths including sudden infant death syndrome, and work on child death review. He is the author/editor of three books and several book chapters and has published extensively on unexpected child death and child death review.

Peter contributes to training programmes in child health, safeguarding and child death review both locally and nationally. Peter is on the Boards of Trustees for BASPCAN and the Lullaby Trust.

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Over the years in my clinical and academic practice, I have found it an incredible privilege to meet with families whose child has died suddenly and unexpectedly. I can only begin to imagine the pain parents must feel, and that even more so when no explanation can be found. I am often overwhelmed by the resilience and grace shown by parents in these extremely difficult circumstances: parents who want to do all they can to prevent other families having to go through similar experiences. It is my hope that through working together in research, education, and supporting families, SUDC UK will help us move to a world where the pain of unexpected and unexplained death is no more.”

Dr Peter Sidebotham

© SUDC 2018

© SUDC 2018

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