Thank you for the care you provide

If you are caring for a family affected by SUDC we hope the following resources will be helpful

  • Please encorrage the family to register with us or you can proactively contact us for a professional referral and we can reach out with helpful information and connect them with the SUDC Foundation for expert professional and peer bereavement support. The U.S.-based SUDC Foundation is a global organisation supporting over 1000 families worldwide including many from the UK.
  • ‘Caring for the SUDC Family’  is a guide containing tailored information for professionals working with families affected by SUDC. Produced by the SUDC Foundation
  • An umbrella organisation called The Good Grief Trust is useful for helping families find local bereavement support
  • Usually our families are referred for medical screening, most often via an Inherited Cardiac Conditions Clinic. Please visit our family screening page for more information

General information

    How does SUDC UK work with professionals?

    SUDC UK aims to collaborate with those who support SUDC families or have an interest in sudden unexplained death. Together we hope to raise awareness and optimise UK processes, services and research. Please do not hesitate to contact us if we can help you in any way.

    SUDC UK works closely with the NHS and other professionals to achieve its mission in the following ways:

    • SUDC UK funds research projects to further our understanding of SUDC
    • SUDC UK participates at conferences to help raise awareness and educate on SUDC
    • SUDC UK advocates for SUDC children and families to encourage best practice in both the national child death review process and the care of SUDC families
    • SUDC UK provides useful resources to help SUDC information be consistent and accurate. 
    • Nikki Speed PhD is our Chief Operating Officer. Please do not hesitate to email  if you have any questions or would like further information. For example,  in regards to a specific family, the CDR process, local medical education including initiatives like SUDIC study days, or to discuss research and the opportunity for SUDC UK funding