A historic debate on SUDC took place on

Tuesday the 17th January at 4.30pm in Westminster Hall

Thank you to everyone who supported this first ever debate on Sudden Unexplained Death in Childhood. We are grateful to Rt Hon Kwasi Kwarteng MP for hosting this debate, to Dr Ben Spencer MP for supporting it, to Julia and Christian Rogers who championed for this debate in memory of their little boy, Louis, and to Frankie Grogan’s and Patrick Walsh’s parents who also attended a meeting with Mr Kwarteng.

Thank you to the huge number of families and professionals who shared their experiences to inform the debate.

What issues were raised for discussion?

  • The need for national medical education
  • The need to prioritise scientific research
  • The need for immediate improvement in public information (e.g., the NHS website still doesn’t contain info on SUDC)

The recommendations discussed in this debate are supported by the National Child Mortality Database SUIDC report that was published on the 8th December 2022 and co-authored by SUDC UK.

After attending the debate with other team members and affected families, SUDC UK Chief Executive, Nikki Speed, shared:

“Listening to MPs share the experiences of SUDC-bereaved families from across the country was very emotional and a huge milestone for us all.

Rt Hon Kwasi Kwarteng MP was clear in the questions he asked the Minister at this first ever debate on Sudden Unexplained Death in Childhood. All MPs in attendance supported the key issues, sharing the heart-breaking stories of their own constituents and reiterating a clear need for SUDC research, medical education and public information. They quoted facts about the devastating impact of SUDC and the limited research compared to SIDS.

The feeling in the room was that far too little had been done for too long and that this was the beginning of a movement to collaborate to prevent future tragedies.

SUDC UK left the debate feeling like this was a critical, very positive step forward. We hope the commitment to research, education and public information from the Minister for Primary Care and Public Health will help changes be made with urgency. We welcomed other points raised by MPs such as the importance of SUDC nurses and the impact of SUDC on siblings.

The words ‘Sudden Unexplained Death in Childhood’ have never been spoken before in Parliament and SUDC is now on the government agenda. We hope meaningful actions and more debates will follow. This was an important day in history for children and we are so grateful to everyone who has supported this progress.”

This video below highlights the importance of SUDC awareness and research and the need for action. Thank you to everyone once again for your support – it made all the difference!