Thank you for the care you provide

If you are caring for a family affected by SUDC, we hope the following resources will be helpful

  • Please encourage the family to register with us or you can proactively contact us for a professional referral and we can reach out with helpful information and connect them with support services. 
  • ‘Caring for the SUDC Family’  is a guide containing tailored information for professionals working with families affected by SUDC (produced by the SUDC Foundation).
  • An umbrella organisation called The Good Grief Trust is useful for helping families find local bereavement support
  • Usually our families are referred for medical screening, most often via an Inherited Cardiac Conditions Clinic. Please visit our family screening page for more information.

General information



    How does SUDC UK work with professionals?

    SUDC UK is supported by our patron Jenni Thomas OBE (founder of Child Bereavement UK) and our expert advisory board: Professor Peter Fleming CBE, Professor Marta Cohen OBE and Dr Joanna Garstang, the interim chair of the Association of Child Death Review Professionals. You can learn more about our team here.  

    SUDC UK aims to collaborate with those who support SUDC families or have an interest in sudden unexplained death. Together, we hope to raise awareness and optimise UK processes, services and research. Please do not hesitate to contact us if we can help you in any way.

    SUDC UK works closely with clinicians, academics, Coroners, CDR and SUDIC teams, bereavement teams, charities, politicians and others to achieve its mission in the following ways:

    • SUDC UK funds research projects to further our understanding of SUDC
    • SUDC UK participates at conferences to help raise awareness and educate on SUDC
    • SUDC UK advocates for SUDC children and families to encourage best practice in both the national child death review process and the care of SUDC families
    • SUDC UK provides useful resources to help SUDC information be consistent and accurate. 
    • Education Meetings at no cost: Nikki Speed PhD is our CEO, co-founder and a bereaved mother herself. She has orally presented at many meetings including NHS Trust Grand Rounds, the RCGP conference,  the British and Irish Association of Paediatric Pathologists (BRIPPA), various SUDI  thematic reviews/study days and the Midlands virtual CDR conference 2020. Please do not hesitate to email  if you have any questions or would like further information. For example,  in regards to a specific family, the Child Death Review process, local medical education meetings, or to discuss research and the opportunity for SUDC UK funding. 


    Below please see some images of support, especially during March, a month dedicated to raising awareness of SUDC. Please join us in supporting #SUDCAwareness each year by wearing our charity colours blue and yellow and sharing information. Please follow @sudcuk1 on twitter for updates and subscribe to our newsletter.