RESOURCES FOR PROFESSIONALS
Thank you for the care you provide
If you are caring for a family affected by SUDC, we hope the following resources will be helpful
- Please encourage the family to register with us or you can proactively contact us for a professional referral and we can reach out with helpful information and connect them with support services.
- ‘Caring for the SUDC Family’ is a guide containing tailored information for professionals working with families affected by SUDC (produced by the SUDC Foundation).
- An umbrella organisation called The Good Grief Trust is useful for helping families find local bereavement support
- Usually our families are referred for medical screening, most often via an Inherited Cardiac Conditions Clinic. Please visit our family screening page for more information.
- Sign up for our annual professional e-newsletter and consent to contact from SUDC UK
- View and request SUDC/SUDC UK public and family information leaflets
- Learn about The SUDC Registry and Research Collaborative (SUDCRRC) A project currently part-funded by research grants from SUDC UK
- SUDIC Professional Guidelines
- SUDC Facts and Statistics
- Information on the child death process (aimed to support families) and terminology used in these cases
- General information on research supported by SUDC UK
- Affiliated SUDC Foundation resources and services including published research, investigation resources
- SUDC UK understand’s that working on these cases can be traumatic and difficult for professionals. If you would like support for yourself or your team, help is available. Please visit MIND’s Blue light Support or the BMA Well Being Support Services
How does SUDC UK work with professionals?
SUDC UK is supported by our patron Jenni Thomas OBE (founder of Child Bereavement UK) and our expert advisory board: Professor Peter Fleming CBE, Professor Marta Cohen OBE and Dr Joanna Garstang. You can learn more about our team here.
“Sudden Unexplained Death in Childhood was never mentioned during my training; not even Paediatrics. Tragically, the first time I heard it was when my gorgeous son Arthur died. Medical awareness has to increase; this has to change”.
Katie, a bereaved mum and GP
SUDC UK aims to collaborate with those who support SUDC families or have an interest in sudden unexplained death. Together, we hope to raise awareness and optimise UK processes, services and research. Please do not hesitate to contact us if we can help you in any way.
SUDC UK works closely with clinicians, academics, Coroners, CDR teams, bereavement teams, charities and other professionals to achieve its mission in the following ways:
- SUDC UK funds research projects to further our understanding of SUDC
- SUDC UK participates at conferences to help raise awareness and educate on SUDC
- SUDC UK advocates for SUDC children and families to encourage best practice in both the national child death review process and the care of SUDC families
- SUDC UK provides useful resources to help SUDC information be consistent and accurate.
- Education Meetings at no cost: Nikki Speed PhD is our CEO, co-founder and a bereaved mother herself. She has orally presented at many meetings including the RCGP conference, the British and Irish Association of Paediatric Pathologists (BRIPPA), various SUDI thematic reviews/study days and the Midlands virtual CDR conference 2020. Please do not hesitate to email Nikki@sudc.org.uk if you have any questions or would like further information. For example, in regards to a specific family, the Child Death Review process, local medical education meetings, or to discuss research and the opportunity for SUDC UK funding.
Below please see some images of support, especially during March, a month dedicated to raising awareness of SUDC. Please join us in supporting #SUDCAwareness each year by wearing our charity colours blue and yellow and sharing information. Please follow @sudcuk1 on twitter for updates and subscribe to our newsletter.