SIBLING RESOURCES

“After hard conversations with my son, we make it part of our routine that we each have a little piece of chocolate to help us transition back to discussing something different” Tom, an SUDC dad

The SUDC team sends a huge, warm hug to any parent or family member who is supporting a bereaved sibling.

Professional and peer support

Our affiliate, the SUDC Foundation has excellent resources for siblings and grandparents. Please sign up to register with the SUDC Foundation support services if you have not done so already. Discussing matters like supporting bereaved siblings with other families who truly understand can be incredibly helpful.

Podcasts

Our wonderful patron, Jenni Thomas OBE (founder of Child Bereavement UK), has created a series of podcasts about Child Bereavement.

These are available from all podcast providers or directly from Jenni’s website and include various topics surrounding child bereavement, including unexplained death, children’s grief and supporting siblings. We are grateful for Jenni’s ongoing support of SUDC UK.

Books

Books can support a supportive resource for conversations with grieving children. This book, Where are you Lydie? written by Emma Poore, is a beautiful example of one that you may find helpful. Other comprehensive booklists are available from Child Bereveament UK, Winston’s Wish and our patron, Jenni Thomas and the SUDC Foundation.

SUDC UK Additional Resources

SUDC UK has specific webpages on resources during and after pregnancy and on screening recommendations for SUDC siblings

Support Organisations

Find local support for a sibling by visiting The Good Grief Trust.

 

Child bereavement UK – a huge array of resources for siblings, young people and schools. Support through Child Bereavement UK professionals may also be available.

Child Bereavement UK’s resources include an insightful video called ‘The invisible suitcase‘. They hope this video will ‘help children understand that their feelings are normal, and know that whilst grief is something that always stays with you, by reaching out for support it is something that you can learn to manage in your life’.

Cruse Bereavement Care – resources for parents and local support groups, some aimed at bereaved children.

Winston’s Wish – support and resources for siblings. This services use to be in certain locations. However, due to COVID remote activities are now accessible wherever you live.

Medical Alert Cards

Even mild illness can make families affected by Sudden Unexplained Death in Childhood extremely anxious. If you would like to receive this informative, credit card size card to help support these difficult conversations with medical professionals please contact us. These cards were adapted from the SUDC Foundation version for use within the UK.

Medical Resources 

Medicines for children – practical advice about medicines.

Medicines for Children is a partnership programme by the Royal College of Paediatrics and Child Health (RCPCH), Neonatal and Paediatric Pharmacists (NPPG) and WellChild.

If you need help

SUDC UK understands how important support is for siblings and their families. Our co-founders have experience of sibling’s grief following SUDC and would like you to know that you are not alone. We may be able to further advise in regards to resources and accessing help.

One SUDC dad, Tom, shared with us “After hard conversations with my son, we make it part of our routine that we each have a little piece of chocolate to help us transition back to discussing something different. There are times when we have frequent deep and difficult discussions about his sister. However, we always get through these times. Talking openly as a family seems to help. The nights were tough in the early days. Professional help has been incredibly helpful at times. We had to speak to a few people to find the right ‘fit’ for our family and my son’s needs”.

SUDC UK We may be able to further advise in regards to resources. Please do not hesitate to contact us.

Once you are fully registered, we also recommmend posting in the SUDC Foundation closed support groups for understanding and advice from other families who have experience supporting children affected by SUDC.