RESOURCES DURING AND AFTER PREGNANCY
Many of us at SUDC UK have been lucky enough to have more children following loss and we understand the mixture of emotions that comes with a ‘rainbow baby’. It is very normal to have anxiety and guilt alongside joy, excitement and many other feelings. Please see the resources below to help you feel prepared, well cared-for and in control. Please contact us if you have any questions.
A guide which is useful to share with your obstertrician or midwife
Please download, print and use this medical care guide to support you when in converstaions with professionals about your care
In some areas of the country, there are midwives who are trained to support bereaved mothers. Their titles may vary and they often focus on women who give birth to stillborn babies. However, they have also been known to support mothers of children affected by SUDC. They are familiar with the nature of grief and the worries and concerns that bereaved parents have during pregnancy. If you think this type of dedicated support would be useful you may need to be persistent and ask various sources to identify and request the appropriate individual. Limited resources mean this support is unfortunately not available in all localities.
Ask for what you want
It is easy to go with the flow but we would encorrage anyone who is pregnant following childloss to really consider what you need to feel most comfortable and reduce anxiety. Then discuss this with your care provider and proactively ask for it. Adaptions to care programs may be possible to help make appointments, pregnancy, anxiety, birth or aftercare easier for you, but you may not be offered these unless you ask. For example, midwives may be able to add a sticker (maybe one usually used for stillbirth or babyloss) onto your paperwork so that professionals know you have experienced loss without you having to say.
Hairdresser and sibling cards
Care of Next Infant – The CONI Scheme
The CONI scheme is funded by the Lullaby Trust and includes a range of services during and after pregnancy. Unfortunately, CONI is not available everywhere. You can call the Lullaby Trust yourself to be referred to the CONI scheme. Alternatively, some GPs or midwives may do this for you. For further information please visit The Lullaby Trust
Video – A bereaved parent’s experience
SUDC UK co-founder, Camilla Gooden, shared her experience of having a baby following the loss of her son, Rex, with umbrella organisation for bereavement support, ‘The Good Grief Trust’. You can watch this video on their website.