SUDC UK TEAM

Nikki's little girl, Rosie, died in 2013, affected by Sudden Unexplained Death in Childhood. She was 2 years old, seemingly completely healthy, very loved and a complete joy. Nikki has a PhD in biochemistry. Using her scientific background and experience as a bereaved parent, she co-founded SUDC UK in 2017. She was appointed the charity's CEO in 2021 and since this time has trained thousands of professionals, directly supported hundreds of suddenly bereaved family members, performed the role of key worker and is an active member of Child Death Overview Panels in England, relevant APPGs, the ACDRP executive committee ACDRP and the Child Bereavement Network. Nikki is a parent representative on the Executive committee and a co-investigator on the Government-funded QUINTET project.

Nikki was a co-author of the NCMD thematic review on SUDIC on SUDIC and successfully advocated for an NHS diagnostic genetic testing pathway after unexplained infant and child death in England (R441). She has authored scientific publications and has published in journals, presented and chaired sessions internationally and supports national Royal College clinical guidelines and education on sudden unexpected death.

Nikki has led parliamentary events and is an elected board member of ISPID and co-chairs their international working group for SUDC, working to advance SUDC research and improve care for families. She has also volunteered upon invitation as a training facilitator for Child Bereavement UK.

In Nikki's role at SUDC UK she is privileged to work alongside other families and experts who share a passion that we must do all we can to prevent SUDC in the future, listen to families and provide the best care possible - for every family.

Please feel free to call or contact Nikki if we can help or you are interested in SUDC. When speaking with another family, Nikki's priorities are always to listen, try to empower them with information and be open about why she believes there is hope after SUDC.

Email: nikki@sudc.org.uk @SUDCUK

Video - most recent National SUDC Day webinar