How is SUDC UK helping?
A core part of SUDC UK’s mission is to raise awareness of SUDC. To do this, SUDC UK works with bereaved families, the public, the press and other professionals to support the distribution of accurate information.
Promoting awareness through education – SUDC UK attends medical conferences and other relevant meetings to provide up-to-date, helpful and consistent information on SUDC. Even whilst face-to-face meetings are suspended, SUDC UK is supporting virtual meetings and online professional education.
Advocating for families – SUDC UK aims to help improve national policy and services and be a voice for our families. To do this, SUDC UK consults on all relevant guidelines and initiatives, including regular attendance as a founding charity member of the national APPG for Bereavement. SUDC UK also advocates for families on an individual case basis in collaboration with the SUDC Foundation.
Supporting families – we are grateful to all our families who are proactive in raising awareness of SUDC. We support their efforts, whether it be via community fundraising events, sharing leaflets, on social media or in the local/national press, radio or TV. Please let us know about any potential awareness activities and we can send you (and your contact) information and resources to help.
Funding research – SUDC UK funds research projects that aim to further our understanding of SUDC. It works with professionals who have an interest in sudden unexplained death to help encourage and optimise research.
Why is raising awareness important?
Greater awareness of Sudden Unexplained Death in Childhood could improve:
- funding for research
- engagement in research
- care and support for bereaved families
- family experience as they seek medical care, screening or bereavement support
- resources for families and professionals
- scientific understanding of how SUDC could be predicted to prevent future deaths
“The future depends on what you do today.” ― Mahatma Gandhi
Please follow the hashtag #sudcawareness to stay up-to-date with our awareness efforts.
For previous SUDC UK annual review newsletters please see below: